What are the symptoms?
The pain experienced by women with vestibulodynia is very individual. The main problem for women with this diagnosis relates to hypersensitivity on light touch to the vestibule, such as during intercourse and on insertion of tampons. The degree of pain is variable. Some women have pain but are able to tolerate penetrative sex. For others any pressure to the vestibule area causes symptoms of soreness and tenderness, including tight clothes and even light touch to the area. Itching is not usually a feature of the condition.
Vestibulitis was the former term for vestibulodynia. This term is out of date now (Vestibulodynia itself now comes under Genito-Pelvic Pain Disorder/Penetration Disorder in DSM-5). It is slightly misleading as it implies that the vestibule is inflamed – hence the term vestibulitis. It is not believed that an inflammatory process in the skin is to blame for symptoms. An excessive sensitivity of the nerve fibres and even, on occasions, overgrowth of the nerve fibres in the area is believed to be responsible for symptoms.
Although the pain on light touch is the main symptom it is wrong to think that this is a skin condition. When sex has been painful for some time there are inevitable effects on your sex life. Tension in the lower pelvic floor muscles during attempted sex can lead to increased pain and subsequent avoidance of sex. If communication breaks down between a couple then this can lead to further disharmony. In some couples where the symptoms have been present for many months or years, provoked vulvodynia can alter sexual function and a referral to a psychosexual counsellor is necessary. For further information contact the VPS.
What is there to see on examination?
Vestibulodynia is a very real physical disease. Often on examination of the vestibule there is tenderness to light touch. There can be red areas at the site of tenderness, but frequently the findings are normal. Just because your doctor cannot see anything does not mean that there is nothing present.
What tests should be done?
Vestibulodynia should be diagnosed by a doctor who should rule out infections and vulval skin conditions which may cause similar symptoms. Many doctors, however, are unaware that the condition exists and often regard the condition as ‘thrush’. Your doctor should listen to your symptoms, examine the vulval area and refer you to a specialist where necessary. This specialist would be either a gynaecologist, dermatologist or a genitourinary (GUM) physician. If thrush is suspected by your doctor then it should be confirmed by performing a vaginal swab. Repeated vaginal anti-thrush treatments make the condition worse so insist on oral treatment instead, with Diflucan or Sporanox, for instance.
How is it treated?
As there is no obvious cause for symptoms, it is difficult for many women (and some doctors) to understand the condition. There are many conditions that it is not! It is not infectious, it is not related to cancer, it will not spread to other parts of your body and you will not pass it on to your partner.
The treatments available for this condition are very variable. Different doctors treat the condition in different ways but below are a selection of suggested treatments. Not all doctors will use these methods, but you can discuss the different options with him or her. Some treatments will help some women and not others. Treatments range from local anaesthetic creams or gels, vaginal dilators and pelvic floor muscle physiotherapy, to psychosexual counselling and sometimes surgery (vestibulectomy).
You can read more about the surgical option, but please remember always to ask for a second opinion. Surgery is very much a last resort and you should explore every other option first.
Be careful of using non-prescribed creams on the vulva as some can cause vulval irritation. Remember the strict vulval hygiene measures that you should practise.
What causes it?
It is likely that a number of factors cause vestibulodynia, but often no identifiable cause can be found. Some women have a sudden onset of symptoms following a specific event: a commonly recognised event is a severe attack of thrush followed by anti-thrush treatment. Once the attack of thrush settles following treatment, soreness and burning may persist as vestibulodynia. Some women complain of vestibulodynia following childbirth, or the use of certain bubble baths and soaps or with the use of antiseptic in the bath, e.g. Dettol. Where symptoms have gradually occurred over some time, even years, then it’s difficult to identify a cause. Some women with interstitial cystitis also suffer from the condition. The reasons why the two conditions are connected remain unknown.
Treatments available from your doctor
Local anaesthetic gel is a water-based gel which contains a weak amount of a local anaesthetic such as lidocaine (lignocaine). The anaesthetic can ‘numb’ the nerves in the skin temporarily and may be used safely on a regular basis. Many women have gained considerable benefit using the treatment, particularly with vestibulodynia when the gel is used half an hour prior to sexual intercourse. They find it helpful to rub the gel into the tender areas – this helps numb the skin and also can help overcome tension in the pelvic floor muscles. The gel can now be bought over the counter. Make sure that you use a test dose first on a small area of the vulva as around 10 per cent of women can have a skin reaction to it.
Vaginal dilators can be inserted to relax the muscles around the entrance to the vagina and to gently stretch the area. These can be helpful to overcome the tension in the pelvic floor muscles that can occur in vestibulodynia.
Tricyclic antidepressant tablets may be useful if the pain that you have is more constant in nature. These are used in low dosages to treat pain directly at the site of the nerve endings in the skin.
Pain is burning and sore in nature
Itching not usually a problem
Can be generalised around the vulva or localised
Pain with light touch eg tampon use or sexual intercourse
Usually no symptoms at other times
Can be generalised around the vulva or localised